Those lovely Parkland Poets have done it again with another very moving poem about their understanding of dementia.
Walking up the down staircase with dementia.
My life hadn’t ended,
When my dementia descended,
I felt confused when it came,
But my passion for life remains the same.
Even though my life has changed.
I re-live sad moments, comfort me when these times come,
Remind me of the good times of when I had so much fun,
So if I have a sad moment and cry,
I can’t help it, even if I try.
So when I can’t understand,
Sit with me and hold my hand.
Dementia sometimes makes me feel confused and unwell,
I get frustrated with myself when I don’t remember everything you tell,
Occupy me with things to do,
This will remind me that I’m still a person too.
Having dementia is like re reading a book,
You’re with me on this chapter but there’s many more, just take a look.
Help me to remember with pictures of family and friends,
I may have forgotten them, but the love never ends.
Even though this chapter in my life is unclear,
I know you’ll help me through and take away the fear
Walking up the down staircase each and every day,
Makes it better when you’re here showing me the way,
Even thought my youth has left and gone,
I still feel young and will till my times done.
Life with dementia is a different chapter,
But I know I’ll get through this chapter with my new family.
Written by Rhianne, Bekki and Lyn “The Parkland Poets”